18/04/2022
COULD NOT BE MORE PUMPED FOR THIS!
Alongside our great mates us & our community initiatives & .goldcoast or teaming up to host a Charity Run for a young Queensland girl, Tallulah who suffers from an extremely rare genetic disorder SPG56 and the charity that her parents created "Genetic Cure For Kids"
Here are the event details as well as a snippet of Tallulah's story:
° Saturday 30th April 630/7am
° Start line Nodo Newstead
° Finish line Nodo Southbank
° $25 entry, all proceeds going to charity
° Ticket includes Nodo donut & drink + entry to a lucky door prize ($100 Nodo & UNFIT & Ume vouchers)
° 5.6km course
° Run, walk, wheelchair, bike, hop, skip, scooter
° All ages and abilities welcome
° Dj post-run
° Post-run raffle (all proceeds go to charity)
° Go fund me donation page
° Co****le games
° Kids face painting
Charity T-Shirts $30 (ONLY AVAILABLE PRE EVENT, LINK IN BIO)
🚨🚨Shirt orders close April 26th & will be handed out on the day. 🚨🚨
Shirts designed by local legends .design &
🚨🚨If you own a local business and you'd like to donate funds or gifts please jump in the DM's🚨🚨
Not interested in running? Bring your family and doggos and meet the runners at Nodo Southbank
Co****le games, kids face painting, Coffee, brekkie and donuts available to purchase at + music by local dj
Tallulah's Story.
In 2020, our shining 14-month daughter Tallulah Moon had just begun to walk and talk. She lit up our hearts with every milestone, laughing and dancing with her doting big brother, Finn. But then one day her dancing stopped.
Very suddenly, her legs stiffened. Her previously confident stride faltered; her tiny feet began to tip-toe, trip and scissor.
Over a few months, Australia’s public healthcare system searched tirelessly for a reason as to why our daughter seemed to be slipping away. Then, through sheer luck and the coordination of doctors across borders, we were able to slip Tallulah Moon into a rare genetic diseases study in Victoria.
Please read remainder of Tallulah's story in our bio.
