09/08/2026
In about a month I'm heading to Arizona for a huge round of medical stuff โ I'll be seeing at least 9 specialists, maybemore.
As that gets closer, now's a good time to ask me questions about what living with this is actually like.
If you're not sure what to ask, here are a few ideas. Feel free to copy/ paste or just tell me the question number and I will answer it.
1. What is even wrong with you? (Seriously โ skip the acronyms, just tell me in plain English)
2. What's the hardest part for you right now?
3. What do you wish people understood, that you never get asked about?
Meanwhile - do you have a weird fact, a good-news story, or a cute animal video? Send it my way โ or, if you're really want to have some fun - challenge me to a trivia duel! ๐ค๐คบ
Please don't hold back because you're worried it's a dumb question, or too blunt, or might come off wrong. Right now the silence is what actually hurts โ I would so much rather sit with an awkward question than another quiet stretch where nobody says anything at all.
Facebook loves it if you include a picture, so here's a quick shot of me with my new hat. ๐งข๐๐ฆฌ